Today I attended the Millard district's Transition Committee meeting. I am staying on the committee as a community member. It will be nice to have this connection to the district; the wonderful team of staff, parents and agencies that comprise this group; and be able to help out with different events the committee puts on throughout the year. This will be the first summer in MANY that I won't be working on the parent resource guide that a couple of teachers and I started MANY years ago for the district. It is full of info and phone numbers for the parents of children with disabilities and has morphed into a very informative document. The fact that the district and the grant that backs this committee provides funding to update it every year keeps it current.
I am tired again today. Last night I fell asleep just fine, but then woke up and couldn't get back to sleep for quite some time. I did manage to sleep until 6:00 - but could have gone until 8 I think - had my mind and body let me.
Had a bit of a scare this morning. My oncologist's office called about one of my chemo drugs (Avastin), saying it might not be covered by our insurance and inquired about our income, stating if it were below a certain amount we could qualify for a free drug program. Well, we weren't below that amount. My heart dropped to my toes, as this drug costs over $17,000 each time. I had already had three treatments with this drug!!!!!! Well, Mark went online and saw that the insurance company had indeed paid for the first infusion, so we assume that I am good to go on the rest. Whew! I wish that person who called had done a little more research before she called and scared the holy 'you know what' out of me!
I got my licence plate light fixed (I didn't realize my plate had a light until it was dragging on the ground), but otherwise nothing else too news worthy today.
Tomorrow I have Peg's funeral and Patty's visitation. Patty's funeral is Saturday. It will be good to get both done - the waiting is hard.
Thursday, May 31, 2007
Wednesday, May 30, 2007
Nice Day
Tonight I am bone tired. I had difficulty falling asleep last night (I was thinking about my friend, Patty) and then woke up early. I went to my cardio exercise class and then hurried home to shower and get ready to go to school to visit the students on their last day (they were released at noon). Then there was a staff luncheon and presentations to those leaving and I was given a nice pen and pencil set and was told I would receive a watch since I retired. Normally the watch is given at the retirement party held earlier in the month, but since I didn't decide until just last week that I was retiring, I missed being included.
After the luncheon I helped Melanie think through a couple of things for next year and then we headed over to the year end party at one of our coworkers homes. It is rare that our department has time to kick back, relax and enjoy each other's company - it is a hard working group - so this afternoon was especially enjoyable! I was brave and nursed one Mikes Hard Lime through out the afternoon. So far I haven't had any heart issues - but time will tell!
It is only 6:15, but I think I could go to bed right now. Hopefully I will get a bit of a second wind and make it until at least 8:00! All in all it was a nice day.
After the luncheon I helped Melanie think through a couple of things for next year and then we headed over to the year end party at one of our coworkers homes. It is rare that our department has time to kick back, relax and enjoy each other's company - it is a hard working group - so this afternoon was especially enjoyable! I was brave and nursed one Mikes Hard Lime through out the afternoon. So far I haven't had any heart issues - but time will tell!
It is only 6:15, but I think I could go to bed right now. Hopefully I will get a bit of a second wind and make it until at least 8:00! All in all it was a nice day.
Tuesday, May 29, 2007
Goodbye
How does one begin to say goodbye to a friend? My friend and coworker, Patty Stone, died this morning from colon cancer. She leaves behind her husband, Gene, and three children, Meredith, Nick & Hillary, as well as numerous young adults with disabilities that she and Gene provided a home for over the years.
Patty had a kind and generous heart. She was smart, funny and a talented cook. She loved to sing (we sat together in church choir) and was a talented pianist. She loved her children and was so proud of them - as well she should have been. I spoke briefly with Patty yesterday afternoon. She sounded so weak. She told me that it was the last time we would speak. I told her I hoped not, but if it was so, I would see her in heaven and that I loved her. I hung up the phone and cried. I will always be grateful for this chance to speak to Patty one last time.
This morning I went to school to be with my coworkers and to help break the news to our students. It was a rough morning, but I was comforted being with those who also had wonderful memories of this great woman. One of my students had stepped into another classroom to have a little time to process. I went in to speak with him, and another student was also sitting with him. I knew they were both Christians and took their faith seriously. I sat down with them and said, "I couldn't say this in front of the whole class, but we know where Mrs. Stone is right now - in heaven. And she isn't in pain anymore." The student said, "Last night I prayed that Mrs. Stone could be out of pain." I told him that his prayers had been answered - that we didn't want Mrs. Stone to go, but we also didn't want her to be in pain. He seemed so grown up and mature right then. I was so proud of him.
When I got to school it was announced that Peg Seversen had also died this morning - from endometrial cancer. If you have followed this blog you will remember she came to my house for a visit shortly after I got home from the hospital. She and I had shared a wig and hats with our first treatments. Peg taught art at Millard South. She was an amazing teacher and had such a heart for all the students. Patty had worked in Peg's room assisting our students when they took her art class. Patty and Peg had a real respect for each other. I envisioned them holding hands as they walked through heavens gates.
This afternoon I am tired -emotionally & physically. Grieving is hard work.
Patty had a kind and generous heart. She was smart, funny and a talented cook. She loved to sing (we sat together in church choir) and was a talented pianist. She loved her children and was so proud of them - as well she should have been. I spoke briefly with Patty yesterday afternoon. She sounded so weak. She told me that it was the last time we would speak. I told her I hoped not, but if it was so, I would see her in heaven and that I loved her. I hung up the phone and cried. I will always be grateful for this chance to speak to Patty one last time.
This morning I went to school to be with my coworkers and to help break the news to our students. It was a rough morning, but I was comforted being with those who also had wonderful memories of this great woman. One of my students had stepped into another classroom to have a little time to process. I went in to speak with him, and another student was also sitting with him. I knew they were both Christians and took their faith seriously. I sat down with them and said, "I couldn't say this in front of the whole class, but we know where Mrs. Stone is right now - in heaven. And she isn't in pain anymore." The student said, "Last night I prayed that Mrs. Stone could be out of pain." I told him that his prayers had been answered - that we didn't want Mrs. Stone to go, but we also didn't want her to be in pain. He seemed so grown up and mature right then. I was so proud of him.
When I got to school it was announced that Peg Seversen had also died this morning - from endometrial cancer. If you have followed this blog you will remember she came to my house for a visit shortly after I got home from the hospital. She and I had shared a wig and hats with our first treatments. Peg taught art at Millard South. She was an amazing teacher and had such a heart for all the students. Patty had worked in Peg's room assisting our students when they took her art class. Patty and Peg had a real respect for each other. I envisioned them holding hands as they walked through heavens gates.
This afternoon I am tired -emotionally & physically. Grieving is hard work.
Monday, May 28, 2007
Memorial Day
Today is the day set aside to remember those who have gone before us. My first thoughts go to my father, who died three years ago. There are many others, of course, who also are on my mind - and I will not attempt to name them all. But remembering those we loved or who had an impact on our lives is what today is about. Through our memories we keep them alive.
Today we also remember those who are, or have, served our country. Thank you to all who have given of themselves to this higher calling. Our nation would not be what it is today without your selfless sacrifice.
Today I also think of my friend Patty who has been fighting against her own personal beast - colon cancer. Patty - I love you and pray for peace for you and your family. You are a good friend and a wonderful co-worker. God speed as you prepare for the next leg of your journey. I am so blessed to know you.
Today I ask for your prayers for my cousin's grandchild - Morgan - who is in the hospital with a severe infection to her dialysis port. She is awaiting a donor for a kidney transplant. This little girl has been through so much in her young life.
Today was also a day of family. Greg, Jaime, Carolyn, Mark and I enjoyed a fillet dinner in our kitchen as we overlooked the newly stained deck (we couldn't sit out there yet as Mark finished it just a little before we started preparing the meal). It looks awesome - and I will post a pic as soon as we can get it put back in order. What a lot of work for Mark!
Happy Memorial Day everyone.
Today we also remember those who are, or have, served our country. Thank you to all who have given of themselves to this higher calling. Our nation would not be what it is today without your selfless sacrifice.
Today I also think of my friend Patty who has been fighting against her own personal beast - colon cancer. Patty - I love you and pray for peace for you and your family. You are a good friend and a wonderful co-worker. God speed as you prepare for the next leg of your journey. I am so blessed to know you.
Today I ask for your prayers for my cousin's grandchild - Morgan - who is in the hospital with a severe infection to her dialysis port. She is awaiting a donor for a kidney transplant. This little girl has been through so much in her young life.
Today was also a day of family. Greg, Jaime, Carolyn, Mark and I enjoyed a fillet dinner in our kitchen as we overlooked the newly stained deck (we couldn't sit out there yet as Mark finished it just a little before we started preparing the meal). It looks awesome - and I will post a pic as soon as we can get it put back in order. What a lot of work for Mark!
Happy Memorial Day everyone.
Sunday, May 27, 2007
It's Not Raining
It's not raining. It was suppose to rain, but as normal in the Midwest, the weather changed it's mind. It looks like it could rain - but it isn't.
Wasn't that an exciting paragraph? Actually, to the Nielsen household it is great news. Poor Mark has been slaving away this weekend on our deck, power washing it, sanding and now staining. What had looked like a bust as far as staining due to the rain forecasted, may just get done since the rain is staying away. I wanted to take his picture as he worked, but he refused, so you won't get to see how nice the deck is looking. Maybe when it is all done and put back together I'll snap a shot of the finished product, since Mark is being camera shy.
I am tired today. I went to bed around 11:00 last night and woke up at 4:15 - then couldn't get back to sleep. I am one of those people that really needs a good 8 hour sleep to feel rested. I took a short little cat nap this afternoon, but still feel very groggy. Other than grocery store shopping and a few little jobs around the house I am just not accomplishing much today. Hopefully my pep will return soon so I can do something a little more worthwhile than sitting in my comfy chair.
Wasn't that an exciting paragraph? Actually, to the Nielsen household it is great news. Poor Mark has been slaving away this weekend on our deck, power washing it, sanding and now staining. What had looked like a bust as far as staining due to the rain forecasted, may just get done since the rain is staying away. I wanted to take his picture as he worked, but he refused, so you won't get to see how nice the deck is looking. Maybe when it is all done and put back together I'll snap a shot of the finished product, since Mark is being camera shy.
I am tired today. I went to bed around 11:00 last night and woke up at 4:15 - then couldn't get back to sleep. I am one of those people that really needs a good 8 hour sleep to feel rested. I took a short little cat nap this afternoon, but still feel very groggy. Other than grocery store shopping and a few little jobs around the house I am just not accomplishing much today. Hopefully my pep will return soon so I can do something a little more worthwhile than sitting in my comfy chair.
Saturday, May 26, 2007
Climbing Out
Not a bad day for my 'climbing out of the blahs' day. It was raining this morning so, since Mark couldn't work on the deck, we jumped in Mark's truck and drove to York to put flowers on Dad's grave. It was also a chance to see York's town square, which was forever changed when a fire raged through the south side of the square earlier this year. It was a quick trip - we were home before noon. (For those that don't know - York is 90 miles from where we live - so it really was a quick trip!)
This afternoon I ran some errands, ending with picking up some fillets at Fareway to grill out sometime this weekend. Yum! We plan on going out with friends this evening - so I will probably take a little snooze pretty soon.
My friend, Diane O, is officially retired! She has been teaching elementary students for a long time and has positively impacted many young lives. She now gets to take a well deserved rest - but knowing her - she won't be relaxing too much!
Mark and I decided this week that I should go ahead and take disability retirement. I was still holding out - thinking I would maybe go back to teaching one day - but the reality is, even if I go in remission (which, of course, I intend to do) the stress of my job would not be conducive to remaining healthy. When I look at the class that my co-teacher, Melanie, will have to deal with next year (she stepped into my position), I know that I wouldn't have the stamina to do the job justice. So, I too am officially retired.
The sun is trying to shine - so enjoy the day!
This afternoon I ran some errands, ending with picking up some fillets at Fareway to grill out sometime this weekend. Yum! We plan on going out with friends this evening - so I will probably take a little snooze pretty soon.
My friend, Diane O, is officially retired! She has been teaching elementary students for a long time and has positively impacted many young lives. She now gets to take a well deserved rest - but knowing her - she won't be relaxing too much!
Mark and I decided this week that I should go ahead and take disability retirement. I was still holding out - thinking I would maybe go back to teaching one day - but the reality is, even if I go in remission (which, of course, I intend to do) the stress of my job would not be conducive to remaining healthy. When I look at the class that my co-teacher, Melanie, will have to deal with next year (she stepped into my position), I know that I wouldn't have the stamina to do the job justice. So, I too am officially retired.
The sun is trying to shine - so enjoy the day!
Friday, May 25, 2007
Best Bad Day
Well, this is the best 'bad day' that I have experienced so far. Fridays are my normal worst days after treatment. Yes, my legs hurt; yes, my appetite is 'off'; yes I don't feel myself. But usually I am extremely blah today and spend the day trying to get comfortable in my normally comfy chair and intermittently sleeping through out the day. However, today I went to Lowes for Mark - who took the day off and was power washing the deck and needed more cleaner. I also went with Mark and Carolyn to the two cemeteries of Mark's grandparents to help put flowers out and will probably go with Mark later to pick out some tomato plants. This is SO MUCH better than I normally do! I am not sure why - but I am thankful!
I am also having a weird craving - braunschwager. I have loved this horribly unhealthy 'meat' since I was a kid. What a weird thing to crave - huh? Mark ran to get a few groceries and he is going to pick up some of this horrible, yummy stuff. He said I didn't have to worry about him taking any, though. It is ALL mine. :-)
I am also having a weird craving - braunschwager. I have loved this horribly unhealthy 'meat' since I was a kid. What a weird thing to crave - huh? Mark ran to get a few groceries and he is going to pick up some of this horrible, yummy stuff. He said I didn't have to worry about him taking any, though. It is ALL mine. :-)
Thursday, May 24, 2007
Another Punky Day
Nothing new today. Feeling punky - but not as bad as the last round, so that is good. I discovered a stronger version of Tylenol which may be what is making this time a bit better. Thank the Lord for medicine! I have a prescription pain medicine, but the Tylenol seems to do a better job without all the side effects.
For those that don't follow American Idol, Jordin did win. She is so talented. I actually even enjoyed Blake's beatbox performance last night. It will be fun to follow the careers of these young people.
For those that don't follow American Idol, Jordin did win. She is so talented. I actually even enjoyed Blake's beatbox performance last night. It will be fun to follow the careers of these young people.
Wednesday, May 23, 2007
Short Post
Today will be a short post. The side effects are starting to rear their ugly heads this afternoon - sore neck and shoulders, sore skin, achy, general feeling of blah ....
The only thing I have accomplished today was going to heart rehab this morning and stopping by a new spice store, Penzey's, to pick up some no salt spice combos. It is a nice store with some lovely spice combos if you are looking for something different. It is located just north of Jones on 72nd.
Tonight we find out who won American Idol. I am sure it will be Jordin - but we will see....
The only thing I have accomplished today was going to heart rehab this morning and stopping by a new spice store, Penzey's, to pick up some no salt spice combos. It is a nice store with some lovely spice combos if you are looking for something different. It is located just north of Jones on 72nd.
Tonight we find out who won American Idol. I am sure it will be Jordin - but we will see....
Tuesday, May 22, 2007
Side Effects
http://www.catclipart.net/Chemo has a kaleidoscope of diverse side effects: can't keep your eyes open to insomnia; constipation to diarrhea; chills to hot flashes; low temp to low grade fever; high blood pressure to low blood pressure - the list goes on. The problem is, you never know which side effect or which end of the spectrum will rear it's ugly head at any one time. None of this in insurmountable - just an irritating fact of life for the chemo patient.
This is also the week I expect to be at my low spot in my outlook on life. I am sure it is some reaction to the meds/chemo - so I know I can prepare myself and do things to keep my spirits up - but it is still present and still something I have to contend with. As I have said before, it is easy to be upbeat when you feel good - not so much when your feel crumby.
A couple of good things I didn't mention yesterday. My oncologist said my right lung sounded really good! The nurses at Rehab had said the same thing - but I didn't trust their opinion since I am still rather new to them - but when the oncologist said it I was happy! I am not scheduled to see my pulmonologist until the end of July, so maybe I will be WAY improved by then!
My onc also said that I was looking very good and even though he won't have me scanned for awhile he was encouraged and thought the chemo was doing 'it's thing'. I have felt the same way so it was nice of him to reiterate it to me. I do have an achy hip, but the pain comes and goes so I think it is probably from my exercises and arthritis that I have had for years. I sure hope so anyway!
Another good thing that happened yesterday was when the phlebotomist asked for my birthday (4.12.53) and then looked shocked and said I looked more like a 1963! Smile. Just what a hairless wonder needed to hear as she prepared to get her treatment, especially since I have been feeling like I look more like a 1943.
My friend, Lynne, emailed me to say she read somewhere that coffee shops brew their regular and decaf coffees in the same pot and there is enough residual caffeine left to effect those sensitive to it. When I got my shot today my nurse said if they use the same grinder, it too will have enough left over regular to take away the caffeine free status. I really think that is what happened to my heart yesterday as I got a large cup since I was going to be sitting for a long time getting chemo, and the timing was about right. Makes sense anyway!
Monday, May 21, 2007
Chemo #4
This morning I went to my heart rehab class an hour early so I could exercise before my chemo treatment. The class afterwards was on eating out. I did NOT share that I had had ribs and nachos over the weekend. That is between me and my heart. :-) More on that later....
After rehab I tootled over to the Estabrooke Cancer Center, had my labs drawn and then headed up to Dr. Silverbergs office for my 4th chemo infusion. The nurse decided to run the pre-drugs (they help with side effects) and then the Aredia (the bone strengthener) first since it was going to be some time before the chemo was sent up from the pharmacy. She was trying to save me some time - which I appreciate! I had purchased a decaf coffee and a scone (another dietary no, no, I am sure) so was sipping and nibbling away. The pre- drugs kicked in (they make me sleepy) so I dozed for a spell. I got up to go to the restroom and the nurse said she was ready to start the chemo drugs when I got back. As I returned to the infusion chair I felt my heart start to whir. Great. I waited for a few minutes and then called the nurse over. She took my pulse and agreed with me, but said my heart wasn't racing. I was surprised, as usually my heart races and then goes into A Fib. In retrospect I shouldn't have been so trusting and gone ahead and popped a rapid heart beat pill like I did on Saturday night. I think a heart pulse in A Fib is hard to count since your heart will go beat......beat, beat, beat, beat.....................beat. She told the doc I was having heart issues, so he ordered an EKG, but gave the OK to continue with the infusion. I knew he would as I arrived at my second chemo while in full fledged Atrial Fib. There is not much that will stop these treatments - which is a good thing! I have my summer life already arranged around the present treatment times!
The EKG confirmed I was in A Fib (no kidding - my heart was flopping around like a fish) and that my pulse was 120. I took a couple of my recovery pills - but they didn't help - I think I just waited too long - live and learn. My heart finally settled down at 3:00 - five hours total of being 'upset' - which is fairly typical. Now, I am just tired.
Once my heart calmed down I headed to the store and then made an easy supper of frozen raviola and Emiril's sauce - but otherwise I have been pretty wimpy. The good news is - because of how the nurse infused me, we know that is wasn't the chemo drugs that caused the A-Fib! So, now what caused it? Did Sean, the nice Crane coffee guy at the hospital, give me regular coffee? Did the Aredia get me? The pre-chemo drugs? Oh cripes - who knows?!?!?! It would sure be nice to have an easy answer rather than just my messed up body!!!! :-)
Observation - what is it about some movies that make us want to watch them over and over? When our kids were little they could watch the same movie a couple times a day, day after day if I would let them. But, Mark and I are just as bad. We both love 'O Brother Where Art Thou' and will watch it on CD or catch parts when it is on TV and laugh in anticipation of upcoming scenes. I could watch 'When Harry Met Sally', 'You've Got Mail' or 'Sleepless in Seattle' a couple times a year, I think. With this in mind, I guess I can't get on Mark too much for watching 'The Greatest Game Ever Played' for like, the fourth time this month, but, it does make me laugh. I guess we are all creatures of habit. If we like something - we like something. At least it's not Dirty Harry!
After rehab I tootled over to the Estabrooke Cancer Center, had my labs drawn and then headed up to Dr. Silverbergs office for my 4th chemo infusion. The nurse decided to run the pre-drugs (they help with side effects) and then the Aredia (the bone strengthener) first since it was going to be some time before the chemo was sent up from the pharmacy. She was trying to save me some time - which I appreciate! I had purchased a decaf coffee and a scone (another dietary no, no, I am sure) so was sipping and nibbling away. The pre- drugs kicked in (they make me sleepy) so I dozed for a spell. I got up to go to the restroom and the nurse said she was ready to start the chemo drugs when I got back. As I returned to the infusion chair I felt my heart start to whir. Great. I waited for a few minutes and then called the nurse over. She took my pulse and agreed with me, but said my heart wasn't racing. I was surprised, as usually my heart races and then goes into A Fib. In retrospect I shouldn't have been so trusting and gone ahead and popped a rapid heart beat pill like I did on Saturday night. I think a heart pulse in A Fib is hard to count since your heart will go beat......beat, beat, beat, beat.....................beat. She told the doc I was having heart issues, so he ordered an EKG, but gave the OK to continue with the infusion. I knew he would as I arrived at my second chemo while in full fledged Atrial Fib. There is not much that will stop these treatments - which is a good thing! I have my summer life already arranged around the present treatment times!
The EKG confirmed I was in A Fib (no kidding - my heart was flopping around like a fish) and that my pulse was 120. I took a couple of my recovery pills - but they didn't help - I think I just waited too long - live and learn. My heart finally settled down at 3:00 - five hours total of being 'upset' - which is fairly typical. Now, I am just tired.
Once my heart calmed down I headed to the store and then made an easy supper of frozen raviola and Emiril's sauce - but otherwise I have been pretty wimpy. The good news is - because of how the nurse infused me, we know that is wasn't the chemo drugs that caused the A-Fib! So, now what caused it? Did Sean, the nice Crane coffee guy at the hospital, give me regular coffee? Did the Aredia get me? The pre-chemo drugs? Oh cripes - who knows?!?!?! It would sure be nice to have an easy answer rather than just my messed up body!!!! :-)
Observation - what is it about some movies that make us want to watch them over and over? When our kids were little they could watch the same movie a couple times a day, day after day if I would let them. But, Mark and I are just as bad. We both love 'O Brother Where Art Thou' and will watch it on CD or catch parts when it is on TV and laugh in anticipation of upcoming scenes. I could watch 'When Harry Met Sally', 'You've Got Mail' or 'Sleepless in Seattle' a couple times a year, I think. With this in mind, I guess I can't get on Mark too much for watching 'The Greatest Game Ever Played' for like, the fourth time this month, but, it does make me laugh. I guess we are all creatures of habit. If we like something - we like something. At least it's not Dirty Harry!
Sunday, May 20, 2007
Lazlo's
Chemo is tomorrow so I would appreciate prayers!
Last night we had an experience at a new local restaurant (the original started in Lincoln) that restored my faith in management. We went out with our dear friends, the Brabecs and O'Connors, to Lazlo's. It happened to be Steve's birthday. Now, if you don't know Steve, he is a real pied piper when it comes to mingling with people. He loves to banter and have fun. While we waited for our table to be ready he, Chris and Mark sat at the bar and Bonnie, Diane and I sat in the waiting area. Well, as the guys waited, they bonded with the bartender, Jeremy - who just happened to be one of the owners. Jeremy, told the guys his recommendation for supper was the BBQ combo - baby backs and rainbow chicken. When we tried to order this our waitress said she had never heard of this combination, so the guys called Jeremy over. Jeremy explained to the waitress (who was a very good waitress, but was fairly new to the establishment) how to write it up - she called it the 'Jeremy Special' - and we were set. Let me tell you - it was delicious! In fact, when we return I may just get the Rainbow Chicken -even though the ribs were tender and finger licking good! Since it was Steve's birthday they let us pick out a couple of desserts (the apple cobbler was divine - and I don't usually like that sort of thing) - and Jeremy even sent a 6 pack of their brewery beer home with Steve. We had a wonderful time laughing and bantering with Jeremy, the waitress and staff and look forward to going back! There is a certain restaurant manager that could take a few lessons from Jeremy!
Last night, right before the Brabecs and O'Connors came to our house (for appetizers) my heart decided to show me who's boss. I am not kidding - just minutes before they came I felt my heart start to whir. I took my blood pressure with my digital machine and sure enough - I was out of rhythm and my pulse was going up. Sigh. I kept checking it every few minutes and finally took one of my recovery pills. This brought everything back to normal, but darn! I had even considered trying a small wine once everyone got here since I hadn't had any issues for awhile. :-( I am not sure what made it do this, but I was at a shower earlier in the day for my nephew Jeff and his wife Shannon's baby. I had a cookie I thought was dipped in vanilla bark but maybe it was white chocolate? Or, maybe I overdid during the afternoon (pulled some weeds and washed off the patio furniture)? Or, maybe my blood counts are down? Or?, Or?, Or?......who knows.
It was nice to see Jeff and Shannon. They live in Littleton, CO and have just bought a new home. They get possession of their house next month but plan on having it remodeled before they move in. I got to see before pictures so it will be fun to see it all spiffed up. Shannon is due in June and I can't wait to meet the new little Anderson boy!
I don't think I have told you that Matt and Courtney have picked a wedding date! It will be July 26, '08. Courtney was able to get the venue she wanted for her reception (the Art Center in Rochester, MN) so it looks like they are good to go. They are in Rochester this weekend doing more planning. The summer of 2008 is when the Anderson reunion is, so I hope the planners pick a time not too close to the wedding as I would love to attend the reunion this time. I wasn't able to go 3 years ago due to Mom's health and last year my health got in the way.
Better go so I can get some things done. We are meeting Mark's step mom, Joyce, and her husband, Sam, for dinner. Two nights in a row of no cooking! Life is good.
Last night we had an experience at a new local restaurant (the original started in Lincoln) that restored my faith in management. We went out with our dear friends, the Brabecs and O'Connors, to Lazlo's. It happened to be Steve's birthday. Now, if you don't know Steve, he is a real pied piper when it comes to mingling with people. He loves to banter and have fun. While we waited for our table to be ready he, Chris and Mark sat at the bar and Bonnie, Diane and I sat in the waiting area. Well, as the guys waited, they bonded with the bartender, Jeremy - who just happened to be one of the owners. Jeremy, told the guys his recommendation for supper was the BBQ combo - baby backs and rainbow chicken. When we tried to order this our waitress said she had never heard of this combination, so the guys called Jeremy over. Jeremy explained to the waitress (who was a very good waitress, but was fairly new to the establishment) how to write it up - she called it the 'Jeremy Special' - and we were set. Let me tell you - it was delicious! In fact, when we return I may just get the Rainbow Chicken -even though the ribs were tender and finger licking good! Since it was Steve's birthday they let us pick out a couple of desserts (the apple cobbler was divine - and I don't usually like that sort of thing) - and Jeremy even sent a 6 pack of their brewery beer home with Steve. We had a wonderful time laughing and bantering with Jeremy, the waitress and staff and look forward to going back! There is a certain restaurant manager that could take a few lessons from Jeremy!
Last night, right before the Brabecs and O'Connors came to our house (for appetizers) my heart decided to show me who's boss. I am not kidding - just minutes before they came I felt my heart start to whir. I took my blood pressure with my digital machine and sure enough - I was out of rhythm and my pulse was going up. Sigh. I kept checking it every few minutes and finally took one of my recovery pills. This brought everything back to normal, but darn! I had even considered trying a small wine once everyone got here since I hadn't had any issues for awhile. :-( I am not sure what made it do this, but I was at a shower earlier in the day for my nephew Jeff and his wife Shannon's baby. I had a cookie I thought was dipped in vanilla bark but maybe it was white chocolate? Or, maybe I overdid during the afternoon (pulled some weeds and washed off the patio furniture)? Or, maybe my blood counts are down? Or?, Or?, Or?......who knows.
It was nice to see Jeff and Shannon. They live in Littleton, CO and have just bought a new home. They get possession of their house next month but plan on having it remodeled before they move in. I got to see before pictures so it will be fun to see it all spiffed up. Shannon is due in June and I can't wait to meet the new little Anderson boy!
I don't think I have told you that Matt and Courtney have picked a wedding date! It will be July 26, '08. Courtney was able to get the venue she wanted for her reception (the Art Center in Rochester, MN) so it looks like they are good to go. They are in Rochester this weekend doing more planning. The summer of 2008 is when the Anderson reunion is, so I hope the planners pick a time not too close to the wedding as I would love to attend the reunion this time. I wasn't able to go 3 years ago due to Mom's health and last year my health got in the way.
Better go so I can get some things done. We are meeting Mark's step mom, Joyce, and her husband, Sam, for dinner. Two nights in a row of no cooking! Life is good.
Friday, May 18, 2007
Goodbye Seniors
Today was the senior open house at my old classroom. It was great seeing my students and many of my co-workers. I wish I would have asked Melanie to send me some pictures from it - maybe I can post some next week. The students did a great job of hosting their party - they always do. Afterwards I stayed and had lunch with my coworkers (cafeteria hot dogs - yum?) and then hashed over some details for next year with Melanie. We will graduate three seniors this year between the two rooms and she and the new teacher will gain eleven freshman. Oh my. It will be a very diverse group, too, so they will have their hands full - especially with a new teacher and a couple of new paras! Melanie has asked for prayers to find good paras - and I think SHE needs prayers for lots of stamina and patience!
My morning started out rather hectic. As I was getting up I remembered I needed to go through my pictures to give to the seniors. When we had water in the basement a few weeks ago from the torrential rains, things got moved around, so I couldn't find my box of photos. I solicited Mark's help before he left for work and we finally found it (with just a little grumbling). Then I took my shower and got ready for my rehab exercise class - jumped in the car and started for class. About a mile down the road I remembered I hadn't taken my meds so had to return to the house. Back in the car I was thinking about the open house at school and realized that it started at 10 instead of 11 as I had thought. This meant I would have to cut my rehab class short so I could get home, shower, dress and get to school on time. Needless to say, by the time I got to my rehab class my blood pressure was a little on the high side!
It feels so good to exercise - especially under the watchful eye of the therapists. I am hooked up to the heart monitor the whole time and they check blood pressure and oxygen levels through out your exercise regime. Right now I do ten minutes on a recumbent bike, ten minutes on a nu step and ten minutes on a treadmill. They keep upping the resistance and speed - which is a good thing. After using the machines we do exercises with dumb bells and stretching. The class ends with a 15 minute 'lesson' in all the different aspects of leading a healthy lifestyle. I am one of the 'youngsters' in our group - and everyone is very nice. It is a pleasant way to spend part of one's morning, although I can feel myself starting to think 'Darn, I need to go to class this morning'. It isn't that I don't like the class - it is just the getting ready, getting there, etc. If it were a bit closer maybe I wouldn't mind so much.
After my busy day I am rather tired. Tomorrow is another busy day so I will stop blogging for today and wish you all a great weekend.
My morning started out rather hectic. As I was getting up I remembered I needed to go through my pictures to give to the seniors. When we had water in the basement a few weeks ago from the torrential rains, things got moved around, so I couldn't find my box of photos. I solicited Mark's help before he left for work and we finally found it (with just a little grumbling). Then I took my shower and got ready for my rehab exercise class - jumped in the car and started for class. About a mile down the road I remembered I hadn't taken my meds so had to return to the house. Back in the car I was thinking about the open house at school and realized that it started at 10 instead of 11 as I had thought. This meant I would have to cut my rehab class short so I could get home, shower, dress and get to school on time. Needless to say, by the time I got to my rehab class my blood pressure was a little on the high side!
It feels so good to exercise - especially under the watchful eye of the therapists. I am hooked up to the heart monitor the whole time and they check blood pressure and oxygen levels through out your exercise regime. Right now I do ten minutes on a recumbent bike, ten minutes on a nu step and ten minutes on a treadmill. They keep upping the resistance and speed - which is a good thing. After using the machines we do exercises with dumb bells and stretching. The class ends with a 15 minute 'lesson' in all the different aspects of leading a healthy lifestyle. I am one of the 'youngsters' in our group - and everyone is very nice. It is a pleasant way to spend part of one's morning, although I can feel myself starting to think 'Darn, I need to go to class this morning'. It isn't that I don't like the class - it is just the getting ready, getting there, etc. If it were a bit closer maybe I wouldn't mind so much.
After my busy day I am rather tired. Tomorrow is another busy day so I will stop blogging for today and wish you all a great weekend.
Thursday, May 17, 2007
Busy Fun Day
Melinda was voted off of American Idol. Hmmmm. My friend Melanie, in yesterday's comments, was probably right - she was more Mo Town than pop idol. I know we will see more of her.
The Granite City saga continues. If you remember, I sent an email to the manager of the Omaha restaurant and the corporate office. I received an infuriating email from the manager stating that we had got off on the 'wrong foot' and that he hadn't meant to be sarcastic but instead was trying to 'make light' of the situation. WHAT? What did he find to make light of? The fact that my mother in law hurt herself? Now that is funny - huh? But worst of all - he was lying! He was sarcastic and rude. He not once asked Carolyn if she was OK. He didn't even identify himself until I asked for the manager. He was guarded and confrontational. He was, in short, a jerk.
I then received an email from corporate giving a very fine apology for the manager's behavior. I emailed this CEO back, thanked him for his response and told him that the Omaha manager's email was also out of line. I also emailed the manager and reamed him, again. Today, I received another email from the CEO, profusely apologizing - agreeing that the manager's response was not satisfactory - invited us to dine on the manager's nickel (when hell freezes over!) and said he was sending the district manager to Omaha to speak with him about this incident. I wrote the CEO back, declined the invite to dine at the manager's expense (I doubt I ever darken the doors at that particular facility unless this manager is no longer there) and told him that knowing the CEOs agreed he was in the wrong and were going to deal with it was enough. Hopefully this jerk of a manager will have learned two lessons here. One - to be humane if someone is injured on his watch and Two - to accept responsibility for his actions. The CEO responded again inviting us to call him personally and he would arrange for us to dine at a different facility - which we would never do - but it was a nice gesture.
I got to go play teacher this afternoon. Melanie was out of the building today making school visitations and tomorrow is our classroom's Senior Open House. Since there would be two teacher subs, plus a para sub she hoped I could volunteer my time to help set up - which I did gladly! The kids bake cakes, make punch, decorate the classroom etc. and then host a party for the seniors. School and district staff members are invited to this celebration as well as students from the Young Adult Program. It is a great opportunity for our students to play hosts and practice entertaining skills. I helped the students frost the cakes (they will decorate them tomorrow) and arrange and decorate the room. Now tomorrow I will return to enjoy the party! Should be fun!
The Granite City saga continues. If you remember, I sent an email to the manager of the Omaha restaurant and the corporate office. I received an infuriating email from the manager stating that we had got off on the 'wrong foot' and that he hadn't meant to be sarcastic but instead was trying to 'make light' of the situation. WHAT? What did he find to make light of? The fact that my mother in law hurt herself? Now that is funny - huh? But worst of all - he was lying! He was sarcastic and rude. He not once asked Carolyn if she was OK. He didn't even identify himself until I asked for the manager. He was guarded and confrontational. He was, in short, a jerk.
I then received an email from corporate giving a very fine apology for the manager's behavior. I emailed this CEO back, thanked him for his response and told him that the Omaha manager's email was also out of line. I also emailed the manager and reamed him, again. Today, I received another email from the CEO, profusely apologizing - agreeing that the manager's response was not satisfactory - invited us to dine on the manager's nickel (when hell freezes over!) and said he was sending the district manager to Omaha to speak with him about this incident. I wrote the CEO back, declined the invite to dine at the manager's expense (I doubt I ever darken the doors at that particular facility unless this manager is no longer there) and told him that knowing the CEOs agreed he was in the wrong and were going to deal with it was enough. Hopefully this jerk of a manager will have learned two lessons here. One - to be humane if someone is injured on his watch and Two - to accept responsibility for his actions. The CEO responded again inviting us to call him personally and he would arrange for us to dine at a different facility - which we would never do - but it was a nice gesture.
I got to go play teacher this afternoon. Melanie was out of the building today making school visitations and tomorrow is our classroom's Senior Open House. Since there would be two teacher subs, plus a para sub she hoped I could volunteer my time to help set up - which I did gladly! The kids bake cakes, make punch, decorate the classroom etc. and then host a party for the seniors. School and district staff members are invited to this celebration as well as students from the Young Adult Program. It is a great opportunity for our students to play hosts and practice entertaining skills. I helped the students frost the cakes (they will decorate them tomorrow) and arrange and decorate the room. Now tomorrow I will return to enjoy the party! Should be fun!
Wednesday, May 16, 2007
American Idol
Melinda, Blake & Jordin
American Idol. My friend Diane O called last night and asked my opinion on the three remaining American Idol contestants - and we were in agreement. Melanie also asked my opinion on her comment on yesterday's blog - so here goes. I changed my mind! I thought for sure that Jordin had it all wrapped up, but after Melinda's performances last night - I am now voting for her - if I really voted :-). I still really don't care for Blake - I still get put off by his beat-boxing - eeuu - but he did a lot less of it last night, so enjoyed him more than normal. However, as beautiful and pure as Jordin's voice is, she is milk toast compared to Melinda's showmanship. The good news is, no matter who gets kicked off tonight, all three have wonderful careers ahead of them.
Melanie also asked to see a snippet of my letter I wrote and emailed to Granite City. If you aren't interested, please just skip this next part, but this is what I wrote - it is really just a recapped of what happened - no demands made - I just don't think that managers should be so cruel and sarcastic - especially when someone has been hurt!
Melanie also asked to see a snippet of my letter I wrote and emailed to Granite City. If you aren't interested, please just skip this next part, but this is what I wrote - it is really just a recapped of what happened - no demands made - I just don't think that managers should be so cruel and sarcastic - especially when someone has been hurt!
I met my mother-in-law, Carolyn Nielsen, her sister, Dorothy McCormick, and her niece, Sue Allen, at Granite City in Omaha, Nebraska, on Tuesday, May 15, for lunch. Since it was busy, we were seated at a booth in the bar. We had a nice lunch and good conversation. Unfortunately, as Carolyn got out of the booth to leave she did not notice the step down and fell to the floor, injuring her arm and perhaps her hip. As of this writing she is waiting for the radiologist’s report and is wearing an arm brace.
At Carolyn’s request, after she fell, we escorted her to the restroom. While in the restroom, as we were washing our hands, a staff member opened the door, stuck her head in and giggled, ‘Oh, I was just checking to see if everything was ok,” and promptly shut the door. She did not wait for a response, so if she truly was concerned about Carolyn’s well being, it was not evident. In lieu of what happened next, I assume she was sent in to see what we were ‘doing’.
As we prepared to leave the restaurant we were discussing whether we should ask for an ice bag for Carolyn’s arm and whether she should go get an x-ray, when we were stopped by a staff member, Matthew King, and told he needed some information. Carolyn told Mr. King that she had missed the step to the booth as she got up to leave, to which he replied, in a sarcastic voice, ‘Well you got into it (the booth)’ implying she knew there was a step up. I told him he was out of line and asked to speak to the manager. He said he was the manager, so I asked for the owner. He said he was the owner. When I told him his comment was uncalled for and I didn’t like his attitude he replied that someone told him that we had said there needed to be a sign or something on the booth warning people about the step down which upset him and got his dander up. What? Someone’s opinion (I found out later that Dorothy had said this to someone) upset him? I told him again that I thought he was out of line and that he should be more concerned about someone falling and hurting themselves at his place of business rather than about comments/opinions someone might make/have. I said his comments and attitude implied that he thought Carolyn had fallen on purpose. He then tried to argue with me that he hadn’t accused her of falling on purpose to which I replied that I did not wish to argue with him or to play semantics games (his tone of voice and attitude spoke volumes) – that he was out of line and I wanted his name.
Mr. King started to write his name on a piece of paper, and then decided to get a business card. He also, finally, noticed that Carolyn, who had sat down by this time in the waiting area, was in pain, and said he would get her an ice bag, too.
When he returned with the ice bag and business card his attitude was better and he was more professional, stating that he didn’t want anyone to get hurt and he was sorry, but as far as I was concerned, the damage was done. His unprofessional attitude and sarcasm was uncalled for.
At Carolyn’s request, after she fell, we escorted her to the restroom. While in the restroom, as we were washing our hands, a staff member opened the door, stuck her head in and giggled, ‘Oh, I was just checking to see if everything was ok,” and promptly shut the door. She did not wait for a response, so if she truly was concerned about Carolyn’s well being, it was not evident. In lieu of what happened next, I assume she was sent in to see what we were ‘doing’.
As we prepared to leave the restaurant we were discussing whether we should ask for an ice bag for Carolyn’s arm and whether she should go get an x-ray, when we were stopped by a staff member, Matthew King, and told he needed some information. Carolyn told Mr. King that she had missed the step to the booth as she got up to leave, to which he replied, in a sarcastic voice, ‘Well you got into it (the booth)’ implying she knew there was a step up. I told him he was out of line and asked to speak to the manager. He said he was the manager, so I asked for the owner. He said he was the owner. When I told him his comment was uncalled for and I didn’t like his attitude he replied that someone told him that we had said there needed to be a sign or something on the booth warning people about the step down which upset him and got his dander up. What? Someone’s opinion (I found out later that Dorothy had said this to someone) upset him? I told him again that I thought he was out of line and that he should be more concerned about someone falling and hurting themselves at his place of business rather than about comments/opinions someone might make/have. I said his comments and attitude implied that he thought Carolyn had fallen on purpose. He then tried to argue with me that he hadn’t accused her of falling on purpose to which I replied that I did not wish to argue with him or to play semantics games (his tone of voice and attitude spoke volumes) – that he was out of line and I wanted his name.
Mr. King started to write his name on a piece of paper, and then decided to get a business card. He also, finally, noticed that Carolyn, who had sat down by this time in the waiting area, was in pain, and said he would get her an ice bag, too.
When he returned with the ice bag and business card his attitude was better and he was more professional, stating that he didn’t want anyone to get hurt and he was sorry, but as far as I was concerned, the damage was done. His unprofessional attitude and sarcasm was uncalled for.
My hopes are that Mr. King will be reprimanded and that he will learn an important lesson in dealing with people. I am still appalled at his bad attitude and lack of caring. He had told Carolyn that she would be hearing from their insurance company, so hopefully they will help with her medical bills. Sigh - how different this whole scenario would be if he had just been kinder and more professional to begin with.
I am just five days away (next Monday morning) from treatment number 4 (number three for the Avastin). Part of me is anxious to get it over with, while another part of me is dreading it. Guess this is normal. Fly away dandelions - be gone ye nasty beast!
Tuesday, May 15, 2007
Dandelions
Today I went to lunch with my mother in law, Carolyn, her sister Dorothy, and Sue, Dorothy's daughter. We went to Granite City and had a lovely meal and enjoyable conversation. Unfortunately, when Carolyn got out of the booth she forgot it was a step down and fell, hurting her wrist. She asked to go to the restroom, so we took her there. As we were preparing to leave the restroom, a waitress stuck her head in and said "Oh, just seeing if everything was alright!", she giggled and closed the door.... strange. As we were leaving we were stopped at the door by the manager. He said he needed some information. Carolyn said she forgot there was a step, to which the manager stated, in a sarcastic voice - 'Well, you got up there." I was livid. How dare he make such a comment? Here a woman fell in his place of business and he had the audacity to act like it was all her fault. ERRRRRR!!!! I verbally lashed him - I couldn't believe it. He came back with some retort about one of his staff overhearing that we said there should be a sign or something there warning people and that made him angry. WHAT? So what if someone did say that - who cares?????? I told him I had not made any such comment ( Dorothy had made that comment to someone while we were in the bathroom) and it sounded like he was trying to accuse Carolyn of doing this on purpose. He tried to argue with me that he hadn't said that to which I responded that I wasn't going to stand there arguing with him and playing semantics games - he was out of line. I asked him for his card. He went to get it and by the time he returned he must have thought about his comments and started back pedaling. I was in no mood for his pandering and told him again I was angry and he had been out of line. Luckily for him I had to leave for an appointment so left the ladies with him. Carolyn reports that he was much kinder and business like during the rest of their dealings with him. Carolyn found out that she has either a contusion or fracture. She is waiting on a radiologist to read her xray. Her hip is a little sore, but hopefully it is just bruised from the fall. Prayers for healing for Carolyn and thanks to Dorothy and Sue for taking her xrays!
Stage 4 breast cancer is hard to explain to people. I am often asked 'how many more treatments do you have?' to which I have to respond - 'I don't know - probably one form or another for the rest of my life'. If my treatments are successful I will be stable, or better yet, put in remission (what we call NED - no evidence of disease). This doesn't mean that we are 'cured', it just means that for the moment we are free from visible cancer. Many people explain it that we are dealing with a chronic disease like diabetes. If you are in the group fortunate enough to have your cancer respond to treatment this is the case. Today, someone on my breast cancer discussion board asked how to explain Stage 4 BC to her friends. The following is a reply that I think is excellent and easy to understand:
Stage 4 breast cancer is hard to explain to people. I am often asked 'how many more treatments do you have?' to which I have to respond - 'I don't know - probably one form or another for the rest of my life'. If my treatments are successful I will be stable, or better yet, put in remission (what we call NED - no evidence of disease). This doesn't mean that we are 'cured', it just means that for the moment we are free from visible cancer. Many people explain it that we are dealing with a chronic disease like diabetes. If you are in the group fortunate enough to have your cancer respond to treatment this is the case. Today, someone on my breast cancer discussion board asked how to explain Stage 4 BC to her friends. The following is a reply that I think is excellent and easy to understand:
"It's like dealing with dandelions after they've gone to seed. You know more will come up if you do nothing, so you keep putting the fertilizer w/ "pre-emergence" on to keep them from growing visibly. It doesn't mean they're gone - and you have to keep after them! Tell them (your friends) that the fact that the tumor & lesions are gone just means you've got the right "pre-emergence" for your cancer for now. Very good news, but doesn't mean you can stop treatments. "
I have two more treatments before I will have scans to see if my present treatment is getting rid of my 'dandelions'. I hope my oncologist is a good gardener and selected the right pre-emergent!
Monday, May 14, 2007
Not Much to Report
Not much to report today. I went and exercised at rehab, took a teeny tiny nap after lunch, ran some errands, and that is about it. I thought I had a luncheon at school, but I had the wrong date. Dates have very little meaning to me any more. I am going to have to work on paying more attention! Luckily I didn't go to school - I spoke with coworkers there who set me straight - whew!
It is now almost 4:00 so I need to be thinking about supper. Chemo makes food just not sound good. It is not that I don't or can't eat, it is just that trying to come up with a palatable menu is next to impossible. Even if I let myself splurge and go to a fast food joint I am hard pressed to come up with one that sounds good. So, now I have to think about tonight's meal. Unfortunately, cheese and crackers wouldn't appeal to Mark, so I guess I had better get creative.
It is now almost 4:00 so I need to be thinking about supper. Chemo makes food just not sound good. It is not that I don't or can't eat, it is just that trying to come up with a palatable menu is next to impossible. Even if I let myself splurge and go to a fast food joint I am hard pressed to come up with one that sounds good. So, now I have to think about tonight's meal. Unfortunately, cheese and crackers wouldn't appeal to Mark, so I guess I had better get creative.
Sunday, May 13, 2007
A Great Weekend!
Happy Mother's Day!
Matt, Greg & Courtney
Mark, Greg, Matt
Mark, Greg & MattWhat a nice weekend! Matt, Courtney and I went to Lincoln Saturday morning and Courtney decided on her wedding dress! She plans on purchasing it in Rochester as she has a coupon, plus they have NO SALES TAX on clothes - wow! It is just that the Lincoln store actually had the dress in stock for her to try on. We then surprised Mom by stopping by for a visit. I tried to call her early in the morning, but she had already left for breakfast and then didn't return as she went straight from breakfast and her morning coffee klatch to the weekly BINGO game held in their activity area. Luckily they hadn't started playing BINGO yet and she was so surprised and happy to see us. We had a nice visit for an hour or so back up in her apartment.
Mark kept busy while we were gone preparing the ground and pouring the concrete to repair the side pad to the driveway. Greg came to help and our wonderful neighbors, Larry and his son Pat, came over and assisted. It looks great!
Last evening, Matt, Courtney, Greg, Jaime, Mark and I went to eat at the China Buffet - which happens to be Mark's favorite restaurant. Because I have had to be so careful with salt we haven't been able to have any type of Oriental food, but now that I have been given the OK to increase my sodium intake (a little) I decided to go ahead and try it. I did the Mongolian grill so I could control the sauces and had many crab legs - it was SO tasty - especially after not having anything like it for a LONG time! When we got home, Carolyn joined us out on the deck to enjoy the beautiful evening. Too bad we can't have weather like this all year long - and NO I would NOT miss snow!
This morning Mark, Matt and Greg made breakfast for the ladies of the house (Carolyn, Courtney and me) for Mother's Day. They were quite the team working on our meal of hash browns, sausage, eggs and cinnamon rolls. Not the healthiest fare in the world, but it certainly tasted good!
As of today I am one week off my heart rhythm medicine, Ambioderone. Also, as of this writing, I have not had any instances of heart rhythm problems. I know this can change in a heart beat (pun intended) but am grateful I have come this far. The Ambioderone is known to possibly cause lung dysfunction, along with a host of other side effects, so I would love it if I could stay off of it. As Mark said, he is learning that medicine is not an exact Science and that it is just a matter of trial and error. Ain't that the truth.
Friday, May 11, 2007
Busy Day
What a busy day! I went to the cardiac rehab first thing this morning, gassed up the car on the way home, went through a car wash then headed home to clean up before going to my friend Donna's house to pick her up for lunch. After dropping Donna off at her home I ran some errands (I am Mark's personal shopper - he hates to shop) then picked up my friend Patty for her radiation treatment. Once I dropped her at her house I went to the grocery store, then came home to fall exhausted in my comfy chair. OK, that is a bit of an exaggeration, but I am feeling a bit tired.
Cardiac Rehab has been a real blessing. I noticed this afternoon that I have more spring in my step and I already feel like I have more stamina. It could just be my imagination, but who cares - as long as I THINK I feel better! :-) Oh - also, my blood pressure has been behaving today - yea!
Matt and Courtney are traveling to Omaha as I type. I will probably not blog until Sunday, so I hope you all have a great weekend and a wonderful Mother's Day!
Cardiac Rehab has been a real blessing. I noticed this afternoon that I have more spring in my step and I already feel like I have more stamina. It could just be my imagination, but who cares - as long as I THINK I feel better! :-) Oh - also, my blood pressure has been behaving today - yea!
Matt and Courtney are traveling to Omaha as I type. I will probably not blog until Sunday, so I hope you all have a great weekend and a wonderful Mother's Day!
Thursday, May 10, 2007
Keeping Me Guessing
All day my blood pressure has been on the high side. NO idea why. However, I just checked it and it is back to normal. I haven't got a clue.....
Because of the bp and not sleeping well last night I wasn't as perky today as I had hoped, but did manage to run errands, ride my bike, do a little house work and bake a cake. I also sneaked in watching the DVD 'Dream Girls'. The vocals on it are amazing. I am going to have to get the soundtrack. I was very impressed with Eddy Murphy and Jaime Fox - they did very well with the vocals! Of course, the women were phenomenal - Jennifer Hudson especially - what a set of pipes - it certainly didn't hurt her career to not make it to the top of American Idol - and Beyonce' is drop dead gorgeous!
Speaking of American Idol - LaKisha was voted off. This is OK, as I really think it will come down to Jordan and Melinda - but I have been wrong before!
Matt and Courtney are coming from DesMoines to Omaha for the weekend! I am sure we will discuss plans for the wedding, expenses and maybe even go look at a dress. In all, it should be a nice weekend.
Have a great Friday! TGIF!
Because of the bp and not sleeping well last night I wasn't as perky today as I had hoped, but did manage to run errands, ride my bike, do a little house work and bake a cake. I also sneaked in watching the DVD 'Dream Girls'. The vocals on it are amazing. I am going to have to get the soundtrack. I was very impressed with Eddy Murphy and Jaime Fox - they did very well with the vocals! Of course, the women were phenomenal - Jennifer Hudson especially - what a set of pipes - it certainly didn't hurt her career to not make it to the top of American Idol - and Beyonce' is drop dead gorgeous!
Speaking of American Idol - LaKisha was voted off. This is OK, as I really think it will come down to Jordan and Melinda - but I have been wrong before!
Matt and Courtney are coming from DesMoines to Omaha for the weekend! I am sure we will discuss plans for the wedding, expenses and maybe even go look at a dress. In all, it should be a nice weekend.
Have a great Friday! TGIF!
Wednesday, May 9, 2007
What a Difference a Day Makes
What a difference a day makes! No overly low or high blood pressure, my energy is just about back to normal and my sore throat is 80% gone. So, maybe my z pack antibiotic has kicked in and that is what was causing my problems. Or, maybe the fact that I am now three days off of my heart rhythm medicine, or perhaps the chemo - who knows - I am just happy to be feeling better!
I exercised at the heart rehab center today. They put a monitor on you, take your blood pressure and then slowly start you exercising. They started me on a recumbent bike, and supposedly I was suppose to be 'warming up'. The tork on that machine felt like I was going up a mountain and my heart went zipping up. By the time the 5 minute 'warm up' was done I was almost trembling! Not wanting to look like a wuss I kept pedaling. When my 5 minute warm up was over I told the the nurse it had been awfully difficult, so she checked it, wasn't sure what happened. She reset it, I did another 5 minutes and it seemed better. As it turns out I was on the wrong bike. Whew! I thought I had turned into a real wimp (which in many ways I have, but not THAT bad!). I worked on a nu step machine and finished on an air dyne bike (which I find the seat extremely uncomfortable). We then stretched and did light weights. I felt great when it was all over. We then had a short class on the benefits of exercise. I didn't really learn anything new, but that's OK. I look forward to going on Friday!
I hit the grocery store and straightened up some drawers in the kitchen - not anything enormously productive - but it felt good to want to do something! I made pizza for supper and feel like I could do a few more things - but will probably watch one of the chick flicks I rented at the store today - and then watch American Idol. I am hoping that the guy gets booted tonight - his be-bopping gets a little old and I think the three ladies left are great (although I like Jordan and Melinda the best).
Enjoy the wonderful weather!
I exercised at the heart rehab center today. They put a monitor on you, take your blood pressure and then slowly start you exercising. They started me on a recumbent bike, and supposedly I was suppose to be 'warming up'. The tork on that machine felt like I was going up a mountain and my heart went zipping up. By the time the 5 minute 'warm up' was done I was almost trembling! Not wanting to look like a wuss I kept pedaling. When my 5 minute warm up was over I told the the nurse it had been awfully difficult, so she checked it, wasn't sure what happened. She reset it, I did another 5 minutes and it seemed better. As it turns out I was on the wrong bike. Whew! I thought I had turned into a real wimp (which in many ways I have, but not THAT bad!). I worked on a nu step machine and finished on an air dyne bike (which I find the seat extremely uncomfortable). We then stretched and did light weights. I felt great when it was all over. We then had a short class on the benefits of exercise. I didn't really learn anything new, but that's OK. I look forward to going on Friday!
I hit the grocery store and straightened up some drawers in the kitchen - not anything enormously productive - but it felt good to want to do something! I made pizza for supper and feel like I could do a few more things - but will probably watch one of the chick flicks I rented at the store today - and then watch American Idol. I am hoping that the guy gets booted tonight - his be-bopping gets a little old and I think the three ladies left are great (although I like Jordan and Melinda the best).
Enjoy the wonderful weather!
Tuesday, May 8, 2007
Odd Day
Another odd day. My blood pressure was extremely low all morning. It didn't matter if I ate something or rested for awhile - it just kept going lower. I felt very light headed and just crumby in general. I have absolutely NO idea what was going on. My throat did get quite sore last night and I ran a low grade fever - so maybe it had something to do with that. The fever is gone now, and while my throat is still sore I feel better, so hopefully tomorrow will be a normal day. I hate to waste any of my two weeks of 'good' time on being sick!
Even though I wasn't feeling well, I did manage to get the refrigerator cleaned out just in time for the movers to bring in the new one. We put the old one out in the garage for beverages and overflow. The freezer that was in the garage is going to Greg's fraternity. This afternoon I felt well enough to transfer items from the old freezer (which also contained everything from the inside freezer) back to the new and old fridge freezers. Mark and I decided we could do with out a big freezer, but I am going to have to do some serious whittling of food to make this work - things are really cramped right now. Or, maybe I will have to go get a small chest freezer. With just the two of us, whittling is probably a better plan. Right now there is a huge turkey and a small turkey - which we really don't need to keep hoarding. Guess roasted turkey will be on the menu sometime soon!
Even though I wasn't feeling well, I did manage to get the refrigerator cleaned out just in time for the movers to bring in the new one. We put the old one out in the garage for beverages and overflow. The freezer that was in the garage is going to Greg's fraternity. This afternoon I felt well enough to transfer items from the old freezer (which also contained everything from the inside freezer) back to the new and old fridge freezers. Mark and I decided we could do with out a big freezer, but I am going to have to do some serious whittling of food to make this work - things are really cramped right now. Or, maybe I will have to go get a small chest freezer. With just the two of us, whittling is probably a better plan. Right now there is a huge turkey and a small turkey - which we really don't need to keep hoarding. Guess roasted turkey will be on the menu sometime soon!
Monday, May 7, 2007
Interesting Day
It has been an interesting day. I started out taking my blood pressure first thing this morning and it was a little high. I took my shower and then started to get shaky and dizzy - now my blood pressure was WAY low. Ate my breakfast and drank some water - the bp started to climb. Headed to my first day at cardiac rehab and the bp was perfect there. Go figure. Yesterday I woke from a nap and had one eye that wasn't focusing right - a check of blood pressure showed it was very high. I am not sure what this high low stuff is all about - but I am sure it is directly related to my chemo treatments.
One side effect I get from the Avastin is a bloody nose. I also get bloody gums when brushing my teeth. The joys of chemo. However, I have had some pretty serious drainage from the same said nose, so my oncologist has prescribed a z - pack (antibiotic) as a precaution. I appreciate his proactive stance as an infection while on chemo can be hard to get rid of.
I have also had a weird side effect that I think is an allergic reaction to a new laxative. I won't go into details, but it is painful and is located where no one particularly wants to visit. My onc said to go to my gp to have it checked out - cowardly onc. My gp said he wasn't sure what it was, but to change laxatives next time and that it would eventually heal. Sigh.
This morning I put a call in to my cardiologist. Now, mind you, I have had a call in to her for a week with no response. I finally called this morning and asked to have a nurse call me. When I hadn't heard from anyone by mid afternoon I called again. This time my call was returned by a nurse. Because of my breathing test my cardiologist is taking me off of my heart rhythm medication. I thought maybe she would just switch me to something else, but her nurse said no, they were just going to see what happens if I go off. OK..... Not sure I like that idea, but guess if she is OK with it, I am too. She made a very small change in how I take my meds, which she hopes will help with my weird high/low bp. Time will tell. However, I would certainly appreciate prayers concerning my heart rhythm and lung function.
I will be going to cardiac rehab three days a week for awhile (except when I am down for the count from treatment). I am looking forward to it and hopefully getting back into a regular exercise routine. I ride my recumbent bike now and then, but I was always timid about doing too much for fear I would stir up my heart. I will be monitored while at rehab, so it should put me at ease. They also have classes you take about diet, etc. I found out today that I can back off a little on monitoring my salt intake. I am still suppose to watch it, but since my last heart function test showed good pumping ability I am not as much at risk for congestive heart failure - yea!
How many of you have had water in your basement? My hand is raised! We have had so much rain that our foundation finally just gave up the ghost. Luckily it was in the storage room and not on any carpeted areas. My friend Carol in Topeka called to say that school was cancelled down there because of flooding. We shouldn't have any drought problems for awhile!
One side effect I get from the Avastin is a bloody nose. I also get bloody gums when brushing my teeth. The joys of chemo. However, I have had some pretty serious drainage from the same said nose, so my oncologist has prescribed a z - pack (antibiotic) as a precaution. I appreciate his proactive stance as an infection while on chemo can be hard to get rid of.
I have also had a weird side effect that I think is an allergic reaction to a new laxative. I won't go into details, but it is painful and is located where no one particularly wants to visit. My onc said to go to my gp to have it checked out - cowardly onc. My gp said he wasn't sure what it was, but to change laxatives next time and that it would eventually heal. Sigh.
This morning I put a call in to my cardiologist. Now, mind you, I have had a call in to her for a week with no response. I finally called this morning and asked to have a nurse call me. When I hadn't heard from anyone by mid afternoon I called again. This time my call was returned by a nurse. Because of my breathing test my cardiologist is taking me off of my heart rhythm medication. I thought maybe she would just switch me to something else, but her nurse said no, they were just going to see what happens if I go off. OK..... Not sure I like that idea, but guess if she is OK with it, I am too. She made a very small change in how I take my meds, which she hopes will help with my weird high/low bp. Time will tell. However, I would certainly appreciate prayers concerning my heart rhythm and lung function.
I will be going to cardiac rehab three days a week for awhile (except when I am down for the count from treatment). I am looking forward to it and hopefully getting back into a regular exercise routine. I ride my recumbent bike now and then, but I was always timid about doing too much for fear I would stir up my heart. I will be monitored while at rehab, so it should put me at ease. They also have classes you take about diet, etc. I found out today that I can back off a little on monitoring my salt intake. I am still suppose to watch it, but since my last heart function test showed good pumping ability I am not as much at risk for congestive heart failure - yea!
How many of you have had water in your basement? My hand is raised! We have had so much rain that our foundation finally just gave up the ghost. Luckily it was in the storage room and not on any carpeted areas. My friend Carol in Topeka called to say that school was cancelled down there because of flooding. We shouldn't have any drought problems for awhile!
Sunday, May 6, 2007
Weekend Post
Saturday morning I woke up feeling somewhat better - less achy - and ready to get back to life. Mark and I started out the morning with the thought of going to three different stores to price a new dishwasher and fridge. We started at Nebraska Furniture Mart (NFM) - which, for those of you not from around here, is a hugemongous store that covers many blocks and contains oodles of furniture and electronics. This weekend also happens to be the Berkshire Hathaway weekend where people from all over the world congregate in Omaha to be wined and dined AND get great deals at stores affiliated with BH founder, Warren Buffet. Of course, yesterday morning just happened to be the day NFM was hosting the BH conglomerate. When we saw the cars lined up to enter the NFM parking lot Mark was unsure he wanted to brave the crowds, but we went in and got assistance right away. Within a few minutes we had found what we wanted, been given a pretty smooth deal and decided to forgo the other stores and just purchase there. While waiting for our sales lady to write our order up I started getting light headed and felt like I was going to take a nose dive. Our sales gal went to get a chair, but I ended up plunking down on a low ledge on the counter as I didn't want to end up on my nose on the floor. While paying the cashier I had to leave Mark to finish up so I could again sit down. I finally decided my blood pressure was low and I was hungry. We stopped and grabbed a Philly sandwich before going on to Target to pick up a few groceries needed for Sat. evening. I still was a bit shaky, but better than I had been at NFM. When I got home I took my blood pressure and it was still pretty low. I rested for awhile and then felt better - and my bp was back to normal. I don't know why my body doesn't cooperate with my time frame of getting back to normal after treatment!
Last night we had a pleasant evening at one of Mark's hunting buddy's game feed. Rick and his wife Cathy had an amazing spread of appetizers and food. Dinner included roasted goose (which I found out Mark had shot last fall), duck nuggets, and pheasant/asparagus alfredo. Rick cooked the entire meal and I was very impressed! Another hunting buddy had brought an appetizer of deer tenderloin which was very tender and tasty. Now, as a child, I was subjected to eating all kinds of wild game and fish. My dad, and later my brother, were/are avid fans of the big hunt. My dad's philosophy about food was you didn't ever complain and you ate it - period. I never enjoyed too many varieties of wild game but had to keep my opinion to myself. I could tolerate deer and that was about it. Lakes and ponds in Nebraska are pretty muddy on the whole so in my opinion fish from our ponds, etc. taste like good ole Nebraska soil. Hence, when I married a hunt lover I explained to him that as an adult I did not have to eat wild game, so it would not be a regular part of our lives regardless of how many ducks, geese, pheasants and deer steaks were in our freezer. I would NEVER think to myself - hmmmm, I think we will have pheasant tonight! However, I told him if he would ask for it, I would prepare it for him. Well, Mark never asks so the birds stay in our freezer until he finally gives them away. I have, at times, had some of his hunting buddies over to help clean out a few of them, but again - it isn't top on my list of things to prepare.
Guess it is time to go get ready for church. Have a blessed day!
Last night we had a pleasant evening at one of Mark's hunting buddy's game feed. Rick and his wife Cathy had an amazing spread of appetizers and food. Dinner included roasted goose (which I found out Mark had shot last fall), duck nuggets, and pheasant/asparagus alfredo. Rick cooked the entire meal and I was very impressed! Another hunting buddy had brought an appetizer of deer tenderloin which was very tender and tasty. Now, as a child, I was subjected to eating all kinds of wild game and fish. My dad, and later my brother, were/are avid fans of the big hunt. My dad's philosophy about food was you didn't ever complain and you ate it - period. I never enjoyed too many varieties of wild game but had to keep my opinion to myself. I could tolerate deer and that was about it. Lakes and ponds in Nebraska are pretty muddy on the whole so in my opinion fish from our ponds, etc. taste like good ole Nebraska soil. Hence, when I married a hunt lover I explained to him that as an adult I did not have to eat wild game, so it would not be a regular part of our lives regardless of how many ducks, geese, pheasants and deer steaks were in our freezer. I would NEVER think to myself - hmmmm, I think we will have pheasant tonight! However, I told him if he would ask for it, I would prepare it for him. Well, Mark never asks so the birds stay in our freezer until he finally gives them away. I have, at times, had some of his hunting buddies over to help clean out a few of them, but again - it isn't top on my list of things to prepare.
Guess it is time to go get ready for church. Have a blessed day!
Friday, May 4, 2007
Pleasantly Surprised
I am pleasantly surprised today. Usually, day 5 after chemo is my worst day. However, today I feel about the same as I did yesterday! I am achy and tired, but I really feel fairly well. I am not ready to run any races or tackle any projects, but I certainly can't complain. The BEST news is my heart has continued to behave - thank you Lord! I am going to assume this is all due to the chemo working and beating down the nasty beast, as well as all the prayers said on my behalf. I so appreciate everyone's prayers.
I want to also say how grateful I am to Millard Public Schools for making my transition from school teacher to disabled person as simple as possible. Michelle Ellis, in Humane Resources, has gone out of her way to answer questions and to make sure we understand all the processes. Millard has policies in place that look out for it's employees - and I am very thankful for this. I have always been proud of being a part of MPS - and this experience has only fortified that feeling.
I want to also say how grateful I am to Millard Public Schools for making my transition from school teacher to disabled person as simple as possible. Michelle Ellis, in Humane Resources, has gone out of her way to answer questions and to make sure we understand all the processes. Millard has policies in place that look out for it's employees - and I am very thankful for this. I have always been proud of being a part of MPS - and this experience has only fortified that feeling.
Thursday, May 3, 2007
Day 4
I am feeling punky, but not horrible. My bones are achy and my skin on my neck, head and shoulders is sore to the touch. I am suppose to drink lots of fluids this week, but water tastes flat and juice is too sweet. I will just have to force myself to drink the water. The good news is no heart palpitations yet - AND I haven't had to take a nausea pill - two wonderful things!
I picked Greg up at the auto repair shop as his car wouldn't start for him yesterday. Of course, the repair shop couldn't get it to act up for them - which always seems to happen to Greg's car. He has needed new tires for awhile so Mark decided to go ahead and purchase them today since the car was in anyway. Greg has borrowed my car until his is finished, which would usually not happen as I like to have my car, but today I could care less. I have no intention of going anywhere, but maybe to bed.
I picked Greg up at the auto repair shop as his car wouldn't start for him yesterday. Of course, the repair shop couldn't get it to act up for them - which always seems to happen to Greg's car. He has needed new tires for awhile so Mark decided to go ahead and purchase them today since the car was in anyway. Greg has borrowed my car until his is finished, which would usually not happen as I like to have my car, but today I could care less. I have no intention of going anywhere, but maybe to bed.
Wednesday, May 2, 2007
Day 3
Day three after chemo has been uneventful. I put hems in four scarves and ran an errand. I decided to not take my anti-nausea pill to see if I needed it - and at least today, I didn't. I hope that tomorrow I will also not have to not take it. I figure the less chemicals I ingest the better. But believe me - if I begin to feel sick I will pop the pill! This afternoon my hips are starting to hurt, so I assume it will be a repeat of last time. The good news is, so far no heart palpitations. It would be great if that was a one time occurrence!
My friend Donna (a breast cancer survivor) had invited us to join her and her husband, Terry, at a concert for breast cancer survivors at the Holland Performing Arts Center tonight, but I knew it wouldn't be a good night for me. Our friends, Diane (also a breast cancer survivor) and Steve are going, though. I know it will be wonderful. Wish we could have joined them!
The errand I ran was to the battery store. Isn't it amazing that there is a store just for batteries? Mark's watch needed a replacement battery as did our cat's laser. Yes, I said our cat's laser. She LOVES the thing. In fact, if you open the drawer where we keep it she comes running. She will jump into the drawer if we don't get it out and paw and paw - I am not sure what she thinks she is doing. If we take pity on her and get the laser out to play with her she will chase the light up and down the steps and all around - and look so sad when you put it away. OK, we spoil her a little.
I have thought that so far I had pretty much avoided chemo brain (read about this in the New York Times) - until last night during my board meeting while writing thank you notes for Special Friends Prom. I couldn't believe how many mistakes I made in spelling, etc. The good thing is I could recognize my errors - but it was weird that my hands couldn't seem to do what my brain wanted them to do. It was also good that I had purchased plenty of thank you cards! If you ever need thank you cards - go to Michael's. You can get 10 cards and envelopes for a buck! You can't beat that! (Thanks Sharon for that tip!)
I have to gear up for the next couple of days. I was surprised last time how blue I got during my two bad days. I knew my side effects would be short lived, but I still felt down, and I am usually a pretty 'up' person. I suppose it may have been a drug induced reaction - well - let me pretend that's what is was at least!
My friend Donna (a breast cancer survivor) had invited us to join her and her husband, Terry, at a concert for breast cancer survivors at the Holland Performing Arts Center tonight, but I knew it wouldn't be a good night for me. Our friends, Diane (also a breast cancer survivor) and Steve are going, though. I know it will be wonderful. Wish we could have joined them!
The errand I ran was to the battery store. Isn't it amazing that there is a store just for batteries? Mark's watch needed a replacement battery as did our cat's laser. Yes, I said our cat's laser. She LOVES the thing. In fact, if you open the drawer where we keep it she comes running. She will jump into the drawer if we don't get it out and paw and paw - I am not sure what she thinks she is doing. If we take pity on her and get the laser out to play with her she will chase the light up and down the steps and all around - and look so sad when you put it away. OK, we spoil her a little.
I have thought that so far I had pretty much avoided chemo brain (read about this in the New York Times) - until last night during my board meeting while writing thank you notes for Special Friends Prom. I couldn't believe how many mistakes I made in spelling, etc. The good thing is I could recognize my errors - but it was weird that my hands couldn't seem to do what my brain wanted them to do. It was also good that I had purchased plenty of thank you cards! If you ever need thank you cards - go to Michael's. You can get 10 cards and envelopes for a buck! You can't beat that! (Thanks Sharon for that tip!)
I have to gear up for the next couple of days. I was surprised last time how blue I got during my two bad days. I knew my side effects would be short lived, but I still felt down, and I am usually a pretty 'up' person. I suppose it may have been a drug induced reaction - well - let me pretend that's what is was at least!
Tuesday, May 1, 2007
Day 2 after chemo
I feel very well today, but my voice is rather raspy (from the chemo called Avastin). I went today for my Neulasta shot and am now waiting to see if the heart palpitations start. So far, so good! I asked my oncologist yesterday about when I will have my next scan to see if the chemo is working. He said I have to have two more chemos. That puts my scan sometime the middle of June. I am anxious to see if this is working. I feel like it is - so I pray that I am right! My onc also said that in the near future he will start me on a daily pill, Femara, which is a hormonal suppressant. I would love it if the chemo treatments would beat the cancer down - and then be able to just do the Femara to keep it stable. Time will tell if this will happen.
Ran some errands today to get out of the house while the Maids were here (what a wonderful gift). I was at a fabric store getting material to make scarves (it is hard to find cotton scarves big enough to make a comfortable head scarf) and noticed the Junior League Jumble Shop - a light bulb went off - and I stopped in to see if they had scarves. I walked out with four pretty scarves for right around $10.00. Now I am ready to go hit similar places - much better than $20.00 for one at the department store.
Tonight the Unlimited Possibilities board will be at my house to knock out the thank yous from our contributors for the Special Friends Prom. It will be good to get this done!
Ran some errands today to get out of the house while the Maids were here (what a wonderful gift). I was at a fabric store getting material to make scarves (it is hard to find cotton scarves big enough to make a comfortable head scarf) and noticed the Junior League Jumble Shop - a light bulb went off - and I stopped in to see if they had scarves. I walked out with four pretty scarves for right around $10.00. Now I am ready to go hit similar places - much better than $20.00 for one at the department store.
Tonight the Unlimited Possibilities board will be at my house to knock out the thank yous from our contributors for the Special Friends Prom. It will be good to get this done!
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